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Authors: Catherine Hale, Sonya Chowdhury, Clare Ogden and Emma Hypher

M.E./CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) is a chronic disabling condition that can have a devastating effect on people’s lives. This interim report, based on findings from a survey carried out by the charity Action for M.E, demonstrates the shocking gap between the need for social care, and the provision of appropriate services, for adults in the UK with this disabling condition.

850 people with M.E./CFS took part in the survey, describing the effect of the condition on their daily lives, their need for social care, and their access to advocacy to facilitate this.


The publisher is Action for M.E.

Close to Collapse © Action for M.E. 2015.

All Rights Reserved. No part of this paper may be reproduced in any form without permission from the publisher except for the quotation of brief passages in reviews.

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